When is a community not a community?
The session entitled “Community management in Pharma” was presented by René Vvan den Bos and Erik Van der Zijden. They focused on mythical ailment for gamers: nintendonitus, but created little (relevant) residual Twitter activity from their presentations, other than the need for transparency when creating an online community and to make sure you have buy-in from internal stakeholders. Also, make sure that the community you are targeting actually want a place online to call a community. And who will moderate? Patients? Are they objective enough? Do they get incentives? (my response: absolutely not, they should want to be involved to better further the community).
Net of physicians
Carwyn Jones of doctors.net.uk outlines doctors.net.uk’s work with international doctors’ networks. He says that the number one use of the internet by doctors is for professional use. Interestingly, they are sharing customer segmentation with Apple and Blackberry to assist doctors.net.uk to understand personal lives/interests. Indeed, Jones mentions 12.5% of doctors are accessing the site from iPhone, with 15,000 downloads of the iPhone application.
Jones asks: ‘How do you engage with a doctor online?’ – he says UK doctors do not have time to view webcasts, they are notoriously time-poor, but their commute is dead time – podcasts are a good solution. He also mentions that they trust Pharma to give them quality educational products (apparently Roche tops these in the survey) and that they only like to see reps if they are of high quality (my perception here is different – and this is discussed later in the programme).
Online, ‘engagement’ is considered 20% more important than content and there are five potential mistakes to building an online asset:
1. Not working out how to promote to your target market
2. Being seduced by technology (iPad anyone?)
3. Overestimate the importance of your brand
4. Measuring the wrong things (‘Time on page’ doesn’t necessarily relate to ‘impact’)
5. Not identifying the target audience
The mother of all dashboards
We now have Judith von Gordon-Weichelt, Head of Media & PR, Boehringer Ingelheim talking about social media monitoring. She demonstrates the dashboard that they use internally to track sentiment, buzz, news, press and other activity surrounding their brands and corporate communications, it’s very comprehensive! They are monitoring English and German social media in-depth and the next challenge is working out how to engage and develop specific guidelines for 44,000 employees. Not much else to say about this other than everyone was very impressed indeed.
We then had a really interesting presentation from Paul Wicks of Patientslikeme on data-driven partnerships between social media and Pharma. He says that good data is getting easier to obtain. At this point (on Twitter) John Mack shares his interview with UCB Pharma and Patientslikeme. Wicks says that Patientslikeme collect reports about treatment from opted-in members and share with all members and partners. He asks Pharma not to create an account to see the user data, but to view the 20% of data that is available publicly.
Wicks says that the more patients engage in Patientslikeme, the more they benefit from it. He uses UCB as an example partner regarding epileptic patients’ unmet needs: providing tools to record seizures: ‘I am not my seizures’ and show how the disease can affect someone’s whole life. Patientslikeme help connect that patients with others in similar positions. He states: “We build communities by helping [patients] manage their condition” and make ‘better decisions through listening to the patient voice‘.
Wicks moves on to the partnership with Novartis on the organ transplant community, where quality of life tracking over the long term reveals rich insight into transplant patients’ experiences, and how to support them. he makes a good point: The keys to maximizing data-driven partnerships is to partner with organisations whose goals align with yours, and, of course, measure something important ‘look for the win-win-win, but always putting the patients’ interests first … always imagine there is a patient in the room with you every time you make a decision’.
Questions from the floor: What is the future for Patientslikeme? Wicks responds that it is to focus on symptom management tools and predictive modelling for a disease. They want to have 3,000+ different communities for patients. And are they planning to provide support to caregivers? Currently caregivers can interact on Patientslikeme on behalf of under-13s, but they are interested in investigating issues with privacy rules to expand this to carers of other communities.
here’s a link to a relevant Patientslikeme study: Sharing health data for better outcomes on PatientsLikeMe
I hope this roundup is a useful resource for readers. Coming soon in part 5: Reportable adverse events and the internet.